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I am writing to introduce an educational and support resource for children with genital and reproductive anomalies and their families.  The MAGIC Foundation, a national non-profit organization dedicated to helping children who are affected by growth disorders, has created a new division called GRAC (Genital and Reproductive Anomalies in Children).  GRAC focuses on a wide range of conditions and syndromes that result from disorders of sexual differentiation. A partial list of syndromes that GRAC covers includes Congenital Adrenal Hyperplasia, Androgen Insensitivity syndrome, Bladder Exstrophy, Mayer Rokitansky syndrome, Turner syndrome and Klinefelter syndrome.  

As you well know, these conditions can create significant psychological challenges that may follow an individual into adulthood. This division hopes to provide families with emotional and educational support through family and patient networking, access to reliable medical and psychological information, and a growing medical professional database.

MAGIC has a successful twelve-year history as a nationwide support group. The ad hoc Committee on Intersex of the Lawson Wilkins Pediatric Endocrine Society serves as a professional advisory board to GRAC.  Having expert doctors and psychologists to use as resources will help the staff at MAGIC better serve these families.  It is the policy of The MAGIC Foundation and all of its divisions to leave recommendations for clinical management to qualified healthcare professionals.

Please consider utilizing The MAGIC Foundation’s newest division as a resource for your patients and their families. I encourage you to call MAGIC’s national headquarters at 1-800-362- 4433 or email me at magicgrac@aol.com with any questions.  

Ellen Jones, Parent Division Consultant

 


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