Genetic Tests

www.genetests.org/servlet/access

Contains a medical genetics laboratory directory, genetics clinic directory, and disease information through companion site (GeneClinics)

Genetics Conditions - Rare Conditions Support Groups & Information

www.kumc.edu/gec/support

Genetic disorders, birth defects, and chromosomal disorders. Information for professionals, educators, and individuals.

Genetics Education Center

www.kumc.edu/gec/geneinfo.html

Information on genetic conditions: clinical genetics resources; clinical genetics centers, departments, and clinics; genetics education center; genetic resources, lectures, and educational materials; ethical, legal, and social implications of the human genome project; genetic computer resources.

Genetics Professionals - Information

www.kumc.edu/gec/geneinfo.html

Information on cancer, cytogenetics, genetics, hyperlipidemia, neurogenetics, single-gene disorders, support groups, and genetics tests. For genetics professionals.

Genetics Terms & Glossary

www.kumc.edu/gec/glossary.html

Contains a variety of sites that define and illustrate genetic terms. For clinicians, educators, and the lay public.

Human Genome Project 

www.ornl.gov/hgmis/

Human Genome Project information and educational materials. Includes pertinence to clinical medicine and ethical, legal, and social issues.

www.nhgri.nih.gov

Human Genome Project Research Institute information. Includes ethical, legal, and social implications

Human Growth Foundation

www.hgfound.org

A lay organization for parents and friends of children with various growth disturbances including overgrowth, growth hormone deficiency, Turner syndrome, and others.

International Society for Pediatric and Adolescent Diabetes

www.ispad.org

News, membership roster and meeting dates for the society.

Lysosomal Storage Diseases

http://www.ldnz.org.nz/index.html

Rare genetic diseases in children. Information to publicize, education, and refer those interested in or concerned about the various lysosomal storage diseases.

March of Dimes

http://modimes.org

Information on birth defects for professionals and families.

MEDLINE  PubMed

www.ncbi.nlm.nih.gov

Provides access to a cornucopia of scientific and medical publications in a searchable format. It is available on the Web site of National Center for Biotechnology Information.

www.ncbi.nlm.nih.gov/Education/index.html

Contains Pub Med and other tutorials.

www.ncbi.nlm.nih.gov/Sitemap/index.html

Contains over 60 links to databases including genes and diseases, gene maps, mutation databases, OMIM PubMed, and educational sites.

Molecular Genetics - Primer

www.ornl.gov/hgmis/publicat/primer/intro.html

A Department of Energy site with information on molecular genetics, gene testing, and the Human Genome Project.

National Association for Rare Disorders - NORD

http://rarediseases.org/

Database of rare disorders. Includes symptoms, causes, diagnostic tests, and treatment.  For professionals, families, and the public.

Neurofibromatosis Homepage

http://nf.org

Information about neurofibromatosis and contacts for related resources.

Online Mendelian Inheritance in Man - OMIM

www.ncbi.nlm.nih.gov/Omim

Textual information, pictures, and reference information on genes and genetic disorders containing clinical findings, references, and gene maps. OMIM has many links to NCBIs Entrez database of MEDLINE articles and sequence information, and many links to other databases.

Policy Statements

American Academy of Pediatrics

www.aap.org/policy/pprgtoc.html

Policy statements and guidelines on diagnosis and treatment of genetic disorders as well as newborn screening.

www.faseb.org/genetics/acmg/pol-menu.htm

Policy statements about genetic diseases, genetic testing, and treatment of genetic disorders.

Quackwatch

www.quackwatch.com