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online
resources |
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The
following links are not necessarily endorsed or sponsored by
GGH and are only included on
this page as a service to viewers of
the GGH
Web site. |
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Genentech, Inc. |
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Learn About Growth and Growth
Hormone Therapy |
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GRAC - Genital and Reproductive Anomalies in Children |
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An educational and support resource for children and their families has
been set up by the MAGIC Foundation. GRAC includes Congenital Adrenal
Hyperplasia, Androgen Insensitivity syndrome, Bladder Exstrophy, Mayer
Rokitansky syndrome, Turner syndrome and Klinefelter syndrome, and others.
Call MAGIC's national headquarters at
1-800-362- 4433 or email at
magicgrac@aol.com with any questions. |
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(Click here for letter from Ellen Jones, Parent Division Consultant) |
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AACE Statement on Women’s Health Initiative
Studies Related to Cognition and Dementia published in JAMA, May 28, 2003 |
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PubMed |
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Access to MedLine |
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National Center for Biotechnology Information |
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OMIM Online
Mendelian Inheritance in Man |
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Program for Growth Charts & BMI's |
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www.cdc.gov/epiinfo |
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www.cdc.gov/growthcharts |
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www.eurogrowth.org |
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| The Healthy
Eating Index |
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www.usda.gov/cnpp |
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| The Lawson
Wilkins Pediatric Endocrine Society |
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www.lwpes.org |
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| American
Association of Clinical Endocrinologists |
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www.aace.com |
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| American Diabetes
Association |
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www.diabetes.org |
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| Prader-Willi
Syndrome Association USA |
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www.pwsausa.org |
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| Juvenile
Diabetes Association |
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www.jdf.org |
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| Turner
Syndrome |
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www.turner-syndrome-us.org |
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| Pediatric
Endocrine Nursing Society |
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http://www.pens.org |
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| American
Thyroid Association |
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www.thyroid.org |
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| Pituitary
Network Association |
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www.pituitary.com |
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| Cushing
Syndrome on MedNetsâ |
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www.mednets.com/cushings.htm |
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| Information and
foundations to help families cope with short children: |
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The MAGIC
Foundation |
| The
MAGIC Foundation is a national nonprofit organization created to provide
support services for the families of children afflicted with a wide
variety of chronic and/or critical disorders, syndromes and diseases that
affect a child's growth. |
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| Little People of
America |
| PO Box 622 |
| San Bruno, CA
94006 |
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| Human Growth
Foundation |
| 4607 Davidson
Drive |
| Cherrylane, MD
20815 |
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| Elevators,
Richlee Shoes |
| PO Box 3566 |
| Fredrick, MD
21702 |
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| FOCUS Families |
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www.focusfamilies.org |
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American Diabetes Association |
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www.diabetes.org |
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For
professionals as well as lay individuals. |
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www.childrenwithdiabetes.com/index_cwd.htm |
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On online community
for children, families, and adults. |
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Cytogenetic Resources |
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www.kumc.edu/gec/geneinfo.html |
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Database of normal and abnormal kayotypes, empirical risks for chromosome
abnormalities, and maps of genes on chromosomes. |
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Dysmorphic Human-Mouse Homology Database - DHMHD |
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www.hgmp.mrc.ac.uk/DHMHD/dysmorph.html |
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Searchable database of phenotypic features that generates differential
diagnoses of syndromes, and genetic and cytogenetic disorders. |
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Endocrine
Society |
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www.endo-society.org |
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Information on Endocrine Society, fellow societies, organizations, and
patient education groups as well as resources for scientists and
physicians. |
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GeneMap'99 |
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www.ncbi.nlm.nih.gov/genemap/ |
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Locations of more than
30,000 genes. Provides a glimpse of some of the most important pieces of
the genome. |
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Genetic Alliance |
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www.geneticalliance.org |
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Disease information as
well as genetic support groups to voice and common concerns of children,
adults, and families living with, and at risk for, genetic conditions. |
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Genetic Counseling Session |
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www.kumc.edu/gec/gcsim.html |
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Simulated session that illustrates the process of genetic counseling. |
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Sociedad Latino Americana de Errores Innatos del
Metabolismo y Pesquisa Neonatal |
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www.sleipm.org |
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(Click here for more OnLine Resources)
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Click here
to view printed version Vol 19 No. 4 (PDF file)
